Cerebral Amyloid Angiopathy | Dementia Support Forum

Publish date: 2024-05-19
Has anyone any experience of or information about this disease. My MIL has supposedly been diagnosed with this - it was on her discharge from hospital notes although nobody has discussed it with us at all. The Doctor originally told us that she had been diagnosed with vascular dementia but later, and on the assessment for CHC they say she has not been diagnosed with dementia, nor do they mention CAA at all.

All a bit confusing, but we can get no sense at all out of the medics who seem to be covering all exits as far as CHC is concerned!! It does seem somewhat coincidental that they took her off aspirin - I understand blood thinners are not recommended for CAA patients.

I have googled CAA and it does seem the symptoms fall entirely in line with some of the things she has suffered this year, however it doesn't give any information as to how this disease is monitored or patients cared for or the progress of the disease.

I also understand that dementia can be a by-product of CAA, and confusion is also part of CAA itself although it also comes hand in hand with dementia. MIL also does hallunate but that seems to be more prevalent when her blood pressure rockets.

So we assume this is a separate and independent condition but not sure how it affects MIL and how she should be monitored and "nursed".

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